Miracle Baby Born with Only Part of a Brain and Skull Has Defied the Odds

Jaxon Emmett Buell was born with most of his brain and skull missing. He had an extreme brain malformation, which meant he would probably not survive the pregnancy. But the baby has defied all odds – and now he has just celebrated his first birthday.

Jax Strong – a nickname he has earned on social media. His inspirational story has taken by storm families across the U.S., with nearly 90,000 people joining to his page on Facebook and 18,000 people sharing his story.

Jaxon was diagnosed as having Anencephaly, a neural tube birth defect. According to the Center for Disease Control and Prevention, about 1 in 4,859 babies in the United States are born with Anencephaly and usually die shortly after birth.

Brandon, a 30-year-old father, said: “After our second ultrasound at 17 weeks, when we found out he was a boy, we knew something was up when the ultrasound technician went towards his head and went very quiet. Brittany, my wife, got the call the next day from the doctors saying there was a concern with the MRI results. She was in tears and told me there was an issue with the baby. Of course, I lost it at work so they sent me home and the rest of the day was a blur truly.”

Doctors gave them the option to terminate the pregnancy at 23 weeks but the young couple, who are against abortion, didn’t do this.

Brandon, who is an assistant to the CEO of a small community bank in Florida, said: “We went home that night thinking if you are telling us to abort, we would never know what Jaxon could have been, if he could have survived. Who are we to decide? We were given a child, we are given a chance and we have to be his voice. We did everything we could to give him a fighting chance and all he’s done since being born is fight right back.”

Brittany, Jaxon’s 27-year-old mother, said: “I was devastated. It was heart breaking, because something I always wanted my whole life was happening, but then I was told there was a possibility it might be a stillborn. It took all the joy away from me. The happiness that normal women have when they are pregnant – I had none of that.”

The miracle baby survived the pregnancy and was born by caesarian section on August 27, 2014. His weight was four pounds. Jaxon spent his first three weeks connected to multiple tubes in a hospital.

Brandon told: “It was very emotional. I remember holding him on day two and listening to the doctors say my son would probably never walk, never talk, never know when he’s hungry, or never hear or see. They really did not expect him to make it.”

But soon doctors found out a true diagnosis – Microhydranencephaly – and applied new medicine that has since eased Jaxon’s condition and made him a lot happier.

Yet Brittany and Brandon still afraid of Jaxon’s health.

Brittany said: “It is always in the back of my mind. I’m very aware that today may be his last day. I’m aware tomorrow he may not be here. I try to stay positive 99 per cent of the time but there is that 1 per cent because I know the reality of the situation – that we’re probably going to outlive him.”

Brandon’s work colleagues set up a GoFundMe page for Jaxon. Nearly $55,000 has been raised by 1,181 donors since then. By the way, the outpouring of support is growing day by day.

Jaxon’s father said: “He thrives with his mom, that one-to-one stimulation that no other therapy can give. If we can keep Brittany at home, giving him that 24/7 care is truly priceless and that’s what his account allows us to do.”

Brittany said: “It’s all been so overwhelming in a positive way because we can’t go anywhere without someone stopping us, and saying, ‘hey, what’s your story?’ or they would have seen his picture and say, ‘hey, look it’s Jax Strong!’ – his nickname! It’s truly incredible the amount of people he has had an impact on.”